Knee Osteoarthritis Self-Management and Knowledge Project

 

Scientific Study title:

Building partnerships to improve care of early knee osteoarthritis patients: Co-developing a risk management tool

 

 

Study Start Date :

May 2016

Study End Date:

May 2018

 

 

What Did We Do?

The goal of this project was to help early knee osteoarthritis patients manage their disease by increasing their involvement in their care process with family doctors. Working with patients, family doctors and other key parties, we created an App, named Knee OA Self-management and Knowledge Application (KOASK). KOASK is able to create a guided self-management plan and provide reliable information to patients. The goal of KOASK is to improve self-care and communication between patients and their health care providers.

 

What Did We Find?

Patients and doctors were involved in all phases of the study, from the original idea of an App to design of the App. This new approach brought the patient point of view front and centre, and made sure that the view of all relevant parties were shown in the final App. The use of this co-design style led to discussions around the needs of patients, focussing on the different ideas and opinions that exist between patients and family doctors. Our study found that exploring these differences might lead to strong design options for patient-focussed health Apps. Understanding and knowing these differences is important for applying patient-focussed health care.

 

Who Was Involved? 

A team of clinicians, decision makers, researchers, patients and analysts with the expertise and engagement to ensure our research is clinically meaningful and is translated into patient-centered policy and practice

 

The Research Team

Principal Investigator:

Deborah A. Marshall, PhD, Senior Scientist, Health Services Research and Health Economics, Arthritis Research Canada (University of Calgary)

Co-investigators:

Sylvia Teare, Jean Miller, Tracy Wasylak, Nancy Marlett, Kelly Mrklas, Behnam Sharif, Peter Faris, Denise Campbell-Scherer, Lee Green

Jolanda Cibere, MD, FRCPC, PhD, Senior Scientist, Rheumatology, Arthritis Research Canada (University of British Columbia)

Jacek Kopec, MD, MSc, PhD, Senior Scientist Emeritus, Epidemiology, Arthritis Research Canada (University of British Columbia)

 

 

Who Funded This Research?

CIHR Knowledge to Action Grant 201

 

 

Additional Information

Publications:

Barber T, Teare S, Miller J, Shewchuk B, Green LA, Marlett N, Cibere J, Mrklas K, Wasylak T, Li L, Campbell-Scherer D, Marshall DA. A Qualitative Study to Elicit Patients’ and Primary Care Physicians’ Perspectives on the Use of a Self-management Mobile Health Application for Knee Osteoarthritis. BMJ Open. 2019; 9(1): e024016.

Marshall DA, Barber T, Shewchuk B, Mrklas K, Miller J, Teare S, Green L, Faris P, Cibere J, Sharif B. A Mobile Health App to Improve Knee Osteoarthritis Self-Management. International Journal of Technology Assessment in Health Care, Jan 2018 34 (S1), 109-110.

Green L, Teare S, Miller J, Marshall DA, Cibere J, Sharif B, Kopec J, Mrklas K, Wasylak T, Marlett N, Campbell-Scherer D, Faris P, Barber T, Shewchuck B. A funny thing happened on the way to an app. Alberta College of Family Physicians – 63rd Annual Scientific Assembly (ASA), Banff, AB, March 3, 2018 (oral presentation).

Marshall DA, Teare S, Miller J, Marlett N, Cibere J, Sharif B. A mobile health app to improve knee osteoarthritis self-management. HTAi Annual Meeting, Vancouver BC, June 3 – 5, 2018 (poster presentation).